martes, 7 de julio de 2009
viernes, 17 de abril de 2009
Autism Southafrica
Autismo Sudáfrica, Rally de Lanzamiento de Globos, 2 de abril, 2009, Sudáfrica
Autism Southafrica, Balloon Release Rally, April 2, 2009, Southafrica
martes, 14 de abril de 2009
Jamaica Autism Support Association - JASA
JASA, Lanzamiento de Globos, 2 abril 2009, Jamaica
JASA, Balloon Release, April 2, 2009, Jamaica
lunes, 13 de abril de 2009
Irish Society for Autism
Irish Society for Autism, Lanzamiento de Globos, 2 abril 2009, Irlanda
Irish Society for Autism, Balloon Release, April 2, 2009, Ireland - Eire
Autisme "La Garriga"
AUTISME LA GARRIGA, Lanzamiento de Globos, 2 abril 2009, Cataluña
AUTISME LA GARRIGA, Balloon Release, April 2 2009, Catalunya
APNA
APNA, Lanzamiento Globos, 2 abril 2009, Madrid
APNA, Balloon Release, April 2, 2009, Madrid
Residencia para Adultos Mª Isabel Bayonas, Lanzamiento de Globos, 2 abril 2009, Madrid
Adults with ASD House Mª Isabel Bayonas, Balloon Release, April 2, 2009, Madrid
jueves, 26 de marzo de 2009
WAO MANIFESTO 2009
Dear friends,
The first anniversary of the UN declaration of the World Autism Awareness Day is about to be marked – on 2nd of April. –Even though the support movement associated with this disability began operating in the sixties and seventies, the struggle has been hard and the efforts intense. At last, we feel that people with autism are ceasing to be “invisible citizens”.
We have come a long way since Leo Kanner defined autism to the present day when the current definition has been expanded to Autism Spectrum Disorders (ASD) or Pervasive Developmental Disorders (PDD).
It has been a difficult and arduous journey but objectives have always been achieved. The causes of autism remain unclear but, over all, we can state with certainty that there have been spectacular advances in treatments. One reason for this is that we have been able to build upon the studies and research from the previous two decades and have improved upon these treatments to great effect. We should not forget that the expansion in the definition is the result of acquired knowledge. This has resulted in an even greater impact.
Indeed there are so many persons all around the world experiencing or suffering from autism that our first obligation must be to watch over them, to attract attention and formulate legislation that defends their rights. We must also ensure that these laws are obeyed.
In a world full of conflicts, could there be better examples than our own children? They are so beautiful and yet isolated that they encourage us to become their protectors to assure a place inside the society along the entire cycle of their lives. It is our responsibility and we accept it with full knowledge of the consequences and being immune to discouragement. Sooner or later we will achieve our aim.
This year the World Autism Organization will be the representative of all these parents, professionals, related people and organizations. Firstly, we exist as a statement of the indisputable presence of the people with ASD all around the world. In the UN we will make our voice heard. This is the voice of the people with autism, and we will demand that the laws be obeyed and that there are improvements in the laws that already exist to the extent that all parties are satisfied. People with autism are, like the rest of society, citizens full rights. They are our reason to keep working, because, my dear friends, people with autism spectrum disorder are NOT “Invisible Citizens” and together, we will persist in claiming the attention and care required.
Even though I cannot accompany you physically, please think that I am at your side and I will bear you all in mind during WAO’s activities inside the UN.
These are happy days for celebrations but we cannot go with the flow, we have lots of steps to walk yet so we must keep together to achieve our common commitment to PEOPLE WITH AUTISM.
The first anniversary of the UN declaration of the World Autism Awareness Day is about to be marked – on 2nd of April. –Even though the support movement associated with this disability began operating in the sixties and seventies, the struggle has been hard and the efforts intense. At last, we feel that people with autism are ceasing to be “invisible citizens”.
We have come a long way since Leo Kanner defined autism to the present day when the current definition has been expanded to Autism Spectrum Disorders (ASD) or Pervasive Developmental Disorders (PDD).
It has been a difficult and arduous journey but objectives have always been achieved. The causes of autism remain unclear but, over all, we can state with certainty that there have been spectacular advances in treatments. One reason for this is that we have been able to build upon the studies and research from the previous two decades and have improved upon these treatments to great effect. We should not forget that the expansion in the definition is the result of acquired knowledge. This has resulted in an even greater impact.
Indeed there are so many persons all around the world experiencing or suffering from autism that our first obligation must be to watch over them, to attract attention and formulate legislation that defends their rights. We must also ensure that these laws are obeyed.
In a world full of conflicts, could there be better examples than our own children? They are so beautiful and yet isolated that they encourage us to become their protectors to assure a place inside the society along the entire cycle of their lives. It is our responsibility and we accept it with full knowledge of the consequences and being immune to discouragement. Sooner or later we will achieve our aim.
This year the World Autism Organization will be the representative of all these parents, professionals, related people and organizations. Firstly, we exist as a statement of the indisputable presence of the people with ASD all around the world. In the UN we will make our voice heard. This is the voice of the people with autism, and we will demand that the laws be obeyed and that there are improvements in the laws that already exist to the extent that all parties are satisfied. People with autism are, like the rest of society, citizens full rights. They are our reason to keep working, because, my dear friends, people with autism spectrum disorder are NOT “Invisible Citizens” and together, we will persist in claiming the attention and care required.
Even though I cannot accompany you physically, please think that I am at your side and I will bear you all in mind during WAO’s activities inside the UN.
These are happy days for celebrations but we cannot go with the flow, we have lots of steps to walk yet so we must keep together to achieve our common commitment to PEOPLE WITH AUTISM.
Madrid, 25th on March de 2009
Mª Isabel Bayonas Ibarra
President
miércoles, 25 de marzo de 2009
OMA MANIFIESTO 2009
Estimados amigos,
Está a punto de cumplirse el primer aniversario de la proclamación por parte de Naciones Unidas del Día de la Concienciación sobre el Autismo –el próximo 2 de Abril- y, aunque el movimiento asociativo relativo a esta discapacidad comenzó su andadura allá por los años 70, sentimos por fin después de tanta lucha y esfuerzo que las personas afectadas están dejando de ser “ciudadanos invisibles”.
Desde que Leo Kanner definiera el autismo hasta hoy en que hemos pasado a ampliar la declaración de esta discapacidad como Trastorno Generalizado del Espectro Autista (TEA) ó Trastorno Generalizado del desarrollo (TGD) se ha recorrido un largo camino.
Ha sido una peregrinación difícil pero los objetivos siempre se han cumplido. Parece vislumbrarse de manera tímida su origen pero desde luego lo que sí podemos afirmar es que en el tratamiento se han producido espectaculares avances. Muestra de ello es que gracias a los estudios e investigaciones de las dos décadas precedentes el tratamiento se aplica con importantes resultados. No olvidemos que la apertura en la definición del espectro autista se produce con el conocimiento y es por ello que la incidencia aparentemente parece haberse multiplicado.
Efectivamente son muchas las personas que sufren autismo en todo el mundo y nuestra primera obligación es velar para que se les atienda convenientemente, que existan leyes que protejan sus derechos así como exigir su cumplimiento.
En este mundo de contrastes qué mejor ejemplo que nuestros propios hijos, tan guapos y tan lejanos que nos empujan a ser sus valedores para asegurar su lugar en nuestra sociedad a lo largo del ciclo vital. Es una responsabilidad que asumimos con todas las consecuencias sabiendo además que somos ajenos al desaliento y que tarde o temprano conseguiremos nuestro objetivo.
Desde la Organización Mundial del Autismo estaremos este año representado a toda esa corriente de padres, profesionales, personas afines, organizaciones vinculadas y por supuesto en primer lugar haciendo notar la presencia indiscutible de las personas con TEA de todo el mundo. Desde Naciones Unidas haremos oír nuestra voz, que es la de las personas con autismo, y exigiremos que se cumplan las leyes y se mejoren las existentes para dar cumplida satisfacción a nuestro colectivo. Las personas con autismo son, como el resto de la sociedad, ciudadanos de pleno derecho, y por ellos seguiremos trabajando, porque, queridos amigos y amigas, las personas que sufren trastorno de espectro autista NO son “Ciudadanos invisibles” y todos, ellos y nosotros, seguiremos reclamando la atención y cuidado que precisan.
Aunque no podré acompañaros de manera presencial, pensad que estoy a vuestro lado y a todos os tendré presentes en los actos de OMA en la ONU.
Estos días son de alegre celebración pero no podemos dejarnos llevar, tenemos todavía muchas etapas por recorrer y debemos mantenernos unidos en nuestro objetivo común que no es otro que LAS PERSONAS CON AUTISMO.
Madrid, 25 de Marzo de 2009
Mª Isabel Bayonas Ibarra
Presidente
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